Visit to the BPC at The Priory to see Mr D.
Great news re the PSA test < 0.01 which is the lowest reading done by the lab. As a result of this I dont need another PSA test until 12 months post op. Basically I am now on annual PSA's, which makes sense as if a recurrence occurs its going to be over a year so why bother with the 3 monthly PSA's that the NHS do? At least I dont have to suffer the anguish of PSA anxiety every three or six months. So next PSA will be in 9 months time.
Completed the EPIC survey document and we went over the questions. Bit disappointed as I am amber for continence due to still using the occasional pad. Hopefully I will go green at the six month check up ( in 3 months time ). ( I have only used a pad for a long distance drive for work on the motorway )
ED, Mr D doesnt want me using Caverject or VED but instead to combine my existing Cialis with Muse once a week. He will write to GP to prescribe, not looking forward to this as apparently it can sting when you use it. We had a discussion around the interpretation of the term 'erection' on the questionaire as it is subjective - agreed my view that its where it is firm enough for penetrative intercourse - I am not there yet. But I am positive that within a year I will be there as he saved both neurovascular bundles, and Mr D seems confident also.
We talked about the upper back/arm pain and he wants me to get this sorted out - so do I. He will refer me to a consultant for shoulder and MRI if GP doesnt. I said i will speak to GP this week and get resolved.
The other pains should go away - including hopefully the abdomen pain - as i didnt have a lump at the spot he wasnt concerned at the moment. To be reviewed at the next visit in another 3 months.
More exercise will help with all these niggling pains.
So, great day really ...
... update - GP believes that the neck/arm pain has been caused by a trapped nerve - 3 hours+ in theatre and putting pressure on my neck will have resurfaced an old problem I had from about 20 years ago. GP also not happy to give me MUSE as I wasnt instructed in clinic. After two weeks of talking to GP and the local NHS hospital I have been prescribed 1 pellet of MUSE to trial the use. I then have to go back and discuss with GP. Makes you wonder why I bother !! Its wrong that we have to fight for our rights to have treatments. Also a highly qualified consultant urologist , one of the best in Europe recommends what I need and a local GP says no! Terrible situation.
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