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Sunday, 30 October 2016

COPD and left Paralized Diaphragm

The night before I had surgery for ulna nerve decompression and transposition plus carpal tunnel I had phone call from GPS.  My latest spirometry confirmed sitting lung function of 53%. He has diagnosed me with stage 2 COPD. This on top of my raised left hemi diaphragm and left Paralized Diaphragm makes it tough to breath especially walking a while. Cpap helps a lot at night. Ventolin doesn't help enough so he has put me on Spiriva 18 Mcg daily.  All this gave a huge problem the following day as I was having surgery at the Nuffield and it doesn't have all the right facilities if I had major respiratory failure. I have been told now by my anesthetist to have future surgeries at nhs or facilities with such care capability.

Spoke to my ortho surgeon and he said I need to see specialist about the diaphragm.  The degeneration c3 c4 c5 may have caused this as that it where the Phrenic nerve is that controls left and right diaphragms.  Have already lost my left. Don't want to lose the right .

Will update blog when I find out more.

In meantime. Now have slow recovery from ulna nerve surgery.

Wednesday, 26 October 2016

4 Years On since Surgery

Well its 4 years now since my surgery and time for my PSA test. Its going to have to be delayed until November as I have to have surgery.

Those problems I had with my neck and nerves following the Prostatectomy have come back. A new MRI was done and electrical tests. The MRI has shown I have problems from C3 to C7 , also I have problems in both arms and hands but my left arm is the worst. Before they can look at doing anything with the neck and C Spine I have to have Ulna Nerve Decompression of the left arm and Carpal Tunnel of the left hand. This is taking place this week.

So PSA will have to wait a few weeks.

This has also got me thinking and doing a lot of reading. I still have the paralysed left diaphragm and no one has explained what has caused this. All they have said is its not Lung cancer. However I am now reading that Phrenic Nerve damage can cause this - that's in the neck. Also compressed nerves caused by secondary cancers can cause this. The MRI didn't show cancers but I will mention all this to my specialist when I see him next month - it did make me think about the Perineural Invasion of the Prostate that was on my biopsy, but this would be hugely rare at 4 years post surgery.  Also going to have a word with GP about this - I sense a visit to a respiratory consultant. Am concerned that the degeneration of the spine has got worse in 4 years. If this is the phrenic nerve and then the other right nerve gets impacted then I will be in a medical emergency scenario breathing wise. Not too good. Need to get to the bottom of it all.

Life goes on.

Monday, 30 November 2015

If i was a Car

So if i was a car and i had a problem my owner would take me to the garage, explain the symptons, diagnose the problem and fix it. 

I am a human body, a more advanced car. My owner has read leading whitepapers from respected research institutes. My nhs gp treates me like a primary school child.

Totally fed up with nhs primary care in UK. Need private primary care and then i can sue if they.get things wrong.

Monday, 16 November 2015

3 Years Cancer Free

Results of my ultra sensitive PSA test is in today and i am still undetectable. That is 3 years cancer free. Discussion about Statins and Heart meds impacting Libido and Sexual functions. Going to speak with GP about possibility of changing statins. Maybe diet change will help.

Monday, 29 June 2015

Getting over ED and now have Heart/Lung issues

Everything is looking good from a Prostate Cancer perspective. No incontinence and the Tadalafil and Sildenafil have aided the erectile recovery and it looks like the nerves are getting better.

Libido has taken a nose dive though and lost all interest. I suspect I am being impacted by medication I have been given for my heart and lungs.

Friday, 28 November 2014

Doesnt rain but it pours - Colonoscopy

Being referred for a colonoscopy by the GP after 6 days of bleeding. Interesting reading that in the USA they recommend that Prostate Cancer patients have a regular screening with a colonoscopy as there is a relationship between prostate cancer and colon polyps/colorectal cancer. Regular screening enables the polyps to be caught early and removed before they turn cancerous. Recommended screening is every three years. Will have to discuss this with GP after my screening.  Problem in the UK is that they don't do this screening. However if you are over 60 they do do this screening for men but not in relation to Prostate Cancer.

I suppose they think over 60 is ok as most prostate cancer occurrences are with men over 60. Just unfortunate a minority of us are under 60 and we are missed.

Other shocker was my weight: need to trim down. 117.8 kg with a BMI of 35.6 is well too heavy.
Must get out more or re-join the gym

Cancer / Recurrence free 2 years post Prostatectomy

Had my check up with the consultant October 2014 and PSA test which has come back with a less than 0.01 which is fabulous news. Consultant was kind when he suggested I had put on a few pounds. Really need to do something about the weight that I have put on. I can only put that down to feeling lethargic and not really wanting to do anything. Doesn't help that 2 years of ED plays on your mental state.